The gait pacer/walker has arrived. As well as the stroller, but that's a longer story. As for the pacer, its awesome, but Felipe spent a lot of time struggling to stand up on his own (which is expected and understandable). So for now, I was told to ace bandage his knees together and then have him try to take at least 5 steps. With the therapist he took 3. One of his legs, after the botox, seems to be moving a lot at the hips. It tries to take a step. The other leg takes awhile to react and doesn't react very strongly. but its so great to see him willing to be mobile. the goal is to get him walking up and down the hallway outside of our apartment. right now, it seems like that distance is like going from crawling to running a marathon! But there is hope! and motivation and faith that things will fall into place.
As for the stroller, it arrived as well but modifications need to be made. Too many in fact and so they are returning it to the manufacturer and then ordering a size bigger. its looks great, he seems so propped up and doesn't move from his position. the regular stroller I have now, he just slumps downward and sideways. I still have a specialized stroller on loan from Blythedale. I will return it once our permanent stroller arrives. I haven't used the specialized stroller in a while bc it was so heavy and impossible to lift in the snow. now that spring is here I will be making an effort to use it more. It just gives him so much more back, hip, and knee support.
Felipe did 30 minutes in the stander today, we've been a little off routine since the time change. But the 30 minutes his feet remained in the braces and he didn't complain of pain...just a little boredom. So even though the full effects of the botox have been yet to be seen, the little changes are awesome so far.
Felipe is down to taking one nap a day, which isn't great news for mami. I'm hoping that its just a time adjustment thing and he goes back to taking 2 naps a day. I need time to clean after him, make something to eat and just try to unwind, or even nap. He has been drinking from a sippy cup, so finally on track regards to introducing a cup. He is trying to spoon feed himself rice cereal. Does a great job the first spoonfuls but then finds it all together entertaining to sprinkle the rice cereal all over the kitchen. He kinda looks like a catholic priest throwing holy water into the audience...he seems to go for distance. He is also trying to communicate more. He still only says "mama" "dada" "byebye" and "hi" but he is enjoying pointing and getting mad when you don't get the true meaning of the point. Today he crawled over to the kitchen, pointed to the loaf of bread and very happily left with a slice of bread, clapping his hands. maybe the next word will be "bread" he seems to like it a lot.
Praying that God willing, things continue to progress. Have a good week!
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