God help me to have more patience...We received notice that Felipe's request for more therapy has been denied bc the physical therapist hasn't worked with him long enough and he can't be expected to meet his goals in such a short period of time. its been 2 months. Its been two months and several doctors have said he should have 5 days a week and not just 3, bc in addition to the massages and work out that I give him at home, he should have services every single day. So apparently, its all a process, but I am in the rage mode where I can't understand why getting things have to be like pulling teeth.
For example, the ongoing service coordinator wants me to mail everything. first of, we aren't in the 1920's and the post office isn't the more efficient way of doing things. Her alternative is to get things faxed in. Regrettably I do not have a land-line bc in the time to prioritize expenses while I am out of a job and relying on one income, we thought, lets get rid of the additional expense that we hardly ever use. That aside, I've faxed things from a local staples in which she doesn't pick up for a day or two at a time. I have to call her to remind her to check her faxes. And I have to incur the extra cost of sending it to two fax machines in her office bc one of them is "sometimes out of service". BUT no, no email bc there is a privacy issue. The first time we spoke in early December, I said, well you know, in the hospitals that I take Felipe, they allow email communication once a parent waives the concerns that the hospitals might have. Do you have such a waiver? She said no. it wasn't just a no, it was an emphatic no.
Guess what?!....After telling her that I will APPEAL in form of a fair hearing Felipe's denial, she tells me there is a series of paperwork that much be filled out first before the fair hearing is requested. Since the appeal is time sensitive she suggests that she will fax it to me. Again, don't have a fax. Then she says, well since you never signed the Email WAIVER, i can't email it to you. ARGH!!!! I again said, I would like to sign the waiver. I have asked about it, you said you didn't have one. She said, ok well then I'll send you a waiver, sign it, email it it back and I'll send you the paperwork for the fair hearing.
ARGHHHHH!!! It took all my energy just to say "Yes." Bc there was plenty of other words I wanted to tell her, and none of them were three letters. So now I got to appeal a decision that is completely arbitrary, before Thursday, in the hopes that they can look up from their mounts of paperwork and "status quo" to give him a chance at making real progress by having what ever medical provider has been saying he needs: physical therapy 5 times a week!
And in other news... Babysitter Candidate #4, a Spanish speaking woman recommended by another coworker didn't work out, she lives in NJ and only travels to Manhattan. Apparently I live in no-mans land.
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