...physical therapist came today to give more detailed info on the walker. Felipe was pretty alert since he did take a nap before she got here. So he was refreshed and ready to check out the new gear. The physical therpist has modified the walker by putting all the gear facing the rear. That way all supports are out in front, prompting him to straight his posture. This explanation would be easier with photos, God willing, I will have some time the end of the week and update the post with photos. The saddle right now is in a good position, but when Felipe gets tired, he sort of just plumps down on it, treating the walker more like a chair than a walker. Felipe took close to 10 steps today. He was really tired. He is eager to reach out and stand but I don't think he gets the concept of walking yet. Slowly.
Today, it hit me for the first time while shopping for food at Costco and seeing a little boy run to the bathroom with his father, that given Felipe can't stand on his own, his potty training is going to be delayed. Not sure why it didn't occur to me now, but it has. Don't have time to get "down" about it just gotta get creative with it. Something to think about, how to introduce the topic but given the limitations, how to address it. Maybe first just getting him to identify the feeling of having to pee/poo, even though he can't go on his own.
Thursday Felipe has his immunizations. His first round of measles vaccine and others. He should have had them close to a month ago but they were postponed bc we didn't want any interference with the botox scheduling. given the outbreak in the Bronx and Washington heights, I admit I'm a little concerned that he is not immunized yet. Pediatrician is eager to see him after the botox. His flexibility continues to improve. Physical therapist noted that his hips are not as rigid/tight as before. But she also noted that his toes are peeking over his brace, which means he had a huge growth spurt and needs new braces!! I see him everyday, its hard to tell from my perspective. I start to see how tall he is when he is in the stander. I think last recorded height was about 3 weeks ago was about 32 inches.
ok, long to-do list not even touched today, but felt accomplished anyway, went for a walk in the nice weather and Felipe passed out with some sun on his face. Eh, its the little blessings I gotta focus on.
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