Botox Week 1

So perhaps its a little too soon to see any results, the doctors say it will be most evident 2 weeks from the date of injection, BUT, Felipe already seems more flexible.  I've been stretching him and he seems to move more easily and not wake up from naps or sleeping so stiffly.  I think there is progress!!

We were able to buy some soft sole shoes from Baby-R-US, thanks Tio David and his wife Tia Patty.  It was tough searching for shoes for Felipe given the angle of his feet.  They are pointed downward so most shoes slip off his feet immediately.  We were really looking to get something on his feet to protect his feet more while he crawls.  We found a pair of shoes that have one set of Velcro on the top band, almost like male version of Mary Jane shoes.  Either way, he wore them all today and they did not fall off his feet more than 2 times.  this is progress!  and he wants to stand more, and these shoes offer a lot of support to his little toes that were exposed to all types of torture without the structure of a shoe.  Praise the lord, we found good shoes for him to wear without his braces.  With his braces we have a pair of sneakers.  But with the current braces, the feet slip out after a few moments of crawling.  we are meeting with the ortho in a few weeks to discuss bracing and what options we should explore for Felipe.  The doctor was thinking of the Hip-knee-ankle braces, kinda of like the ones you see in the movie Forrest Gump--the ones he runs out from.  But depending on how strong we can get his knees in the next few weeks maybe all he will need are Ankle-foot braces that can steady his feet as he learns to balance while he walks.  Felipe is eager to stand, that is large part is the biggest progress and success we can count on.  He is motivated to reach for things, especially anything with wires and my cellphone.  So as long as he has a good attitude about it all, we can only expect more progress.

The equipment arrives on Monday! I am so excited!!! A specialized stroller and a gait pacer--basically a walker with a harness.  Photos to come as soon as the stuff arrives.