Ortho and EI Mediation update.

Ortho said Felipe is still very tight and might need another botox injection.  This will most likely happen in June.  The next botox injection will be solely focused on his hamstrings.  The last dosage was spread over 9 shots so maybe a more concentrated dosage will keep him very flexible.  Despite what the doctor says, he is so much more flexible than before.  He has outgrown his braces and he needs new ones.  Hopefully the new ones will be easier to put on and off.  He also provided me with a very short letter saying that he should have therapy 5 times a week.  Lets hope that helps with the mediation.  In regards to the Hips, he wants to keep on monitoring the hip displacement.  His first impression is that its somewhat normal for his age and tightness within his muscles and it should resolve itself with a lot of weight bearing exercises.

I received a call from the director of medicine within the Early Intervention program.  He says he wanted to know more information about Felipe and why I was thinking that he should have therapy five times a week.  I was hoping that he would have an answer during the phone call but instead said he "will think about it and call right back"  No phone call yet.  I have a feeling that they want to extend the time for 60 minutes but that will not be helpful for Felipe who can't stay focused for that long.  Praying that things work out for the best. It seems weird that "opposing" side would contact me over the phone before the mediation date.  IDK, I don't have that much experience in this area but seems like the majority of parents just give up and don't request mediation.  This whole process enrages me for the parents who don't fight back bc these officials use their authority or title to intimate. Its definitely not about the welfare of the child but how to save money and do the least amount possible.  :(

To Do:  1) follow up with Ortho.  Wait about a week to schedule an appointment with Ortho once insurance approves Botox injection from their specialty pharmacy. Assistant said she will call me but to check in within the week in case. 2) organize the papers and letters in support for Felipe's increase and make multiple copies to distribute at Mediation Session.

Therapist told us to only put Felipe in high chair if he has his braces on.  He can not have his feet dangling. So now, at any point, he can have his braces on.  Just not for crawling. Its actually made the transition from eating to doing time in the stander much easier.  He finishes eating and then I pick him up and put him in the stander.  He is pooped from all the exercises.  He is napping longer.

He also has a rash on his face.  Apparently it might be a reaction to the MMR vaccine or something he ate.  Its just on his face and it isn't itchy.  But he seems tired and hasn't wanted to eat as much as he usually does.  He is drinking A LOT.  No fever as of yet, I'm monitoring him and if the rash doesn't get better by tomorrow I will call the pediatrician.  Apparently the MMR vaccine is very common.  :(.