As his mom I see him everyday and its hard to keep in perspective his progress so far. We went to Blyethedale to hand in the stroller that the hospital lent us. When we arrived his teacher from "infant school" said he looked stronger and leaner but more confident in his crawling. That he definitely is; so much so that its getting hard to entice him to start walking. The latest advice I got was to put him in the walker and have him walk towards his food at meal times. Hmm, tried to do that this morning and well, it didn't go as expected. I shall try again at dinner, in the hopes that by seeing Daddy at the table he will have two incentives to walk over.
Yesterday, we also had our first session of physical therapy in HSS after missing for a month. we missed a month bc Felipe was sick, or having the botox, or we were moving. All of which gave us a new perspective on how things are going. The therapist we usually saw gave us an overview of where he was at about a month ago and where he is now, and also, the stuff he needs to master for the future. we only have a limited number of time we can continue at HSS since we now have been approved for therapy 5 times a week with early intervention. I was using HSS as a one time a week, additional therapy that the insurance would cover. I think it was great to have two different perspectives and approaches (and personalities) work with Felipe. I am grateful that they are so knowledgeable and helpful in trying to help Felipe recover.
as for the aforementioned perspective, the therapist at HSS said that last month, felipe wasn't very strong when he would stand up and learn with two arms. He would buckle occasionally at the knees after a few seconds of standing. Now his knees are stronger and he is standing and leaning but only supporting himself with one arm so that he can explore with the other arm. His hips are stronger, but that could also be the botox. He is able to lift up his knees/hips to pass obstacles. So there is progress!
The things he needs to continue to do and improve on, continue to bear weight (on his own and using the stander)and trying to take strides on his own. The bearing weight is important to getting his hips formed in away that will prevent him from getting hip surgery. And also is the best and only way to keep his calf muscles from wasting away, or atrophying. That is something I have noticed, his legs are getting so thin, especially after he used to be a chunky little one.
Praying for continued perspective, patience and God willing, progress. And praying for all the kind medical providers that have helped us along the way.
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