...Felipe is doing well. However the botox is clearly a race against time. We have to work those muscles as much as we can before they get back to where they used to be, very tight and inflexible. Every morning, I stretch felipe's legs and hips and I feel the tightness trying to creep back into his muscles. All this week I've placed felipe in the stander for 30 minutes for 3 times a day, every day. He is tolerating being in his braces for longer periods of time. This is all due to the botox, thank God for that, however, there are little signs that the botox is wearing off. His right brace, the tighter muscles, have slipped off several times while doing some exercises. It only serves as a reminder that we gotta do as much as we can, as much as felipe can tolerate in the time we have the botox relaxing the muscles.
Felipe is getting chatter and chatter. So far he has begun to mimic more of the adult conversation. I swear he said "mine!" the other day in regards to the swiffer. He loves that thing, fortunately, he can clean up after the messes he makes :)
we were approved for the 5 times physical therapy but we haven't had a session as of yet. still waiting and getting annoyed and impatient. my current service provider follows a Jewish holiday schedule. I have had some days off when I was in college, but it was not nearly as disruptive as this very orthodox schedule. Next week, Felipe will only get one day of physical therapy for the week! And apparently in September it gets even worse with the holy days then. I'm not sure what to do. A friend of mine, with knowledge in the field, suggested switching agencies. I like the physical therapist so I would want to keep her as long as I could. I am praying on guidance on this topic, I just don't know what to do. or what might be the best strategy. Sounds like the physical therapist might relocate and might end up leaving the agency anyway, so perhaps I should put in a request to switch agencies. First thought, I need to pray on it more.
Tomorrow we have physical therapy at HSS, for one of the last sessions of the year. We have the ability to try out theratogs, which are being recommended by the EI PT. Theratogs are basically gurdles, or tight fitting cloth that helps with positioning, posture and muscle flow. Usually discouraged with kids with sensory issues, figured we tried it out before spending the EI money on the item. Some kids find it very restrictive. And others don't mind it at all. Personally, I dislike anything that makes me feel like a stuffed sausage. I'm hoping that Felipe isn't as picky as his mami.
Today during physical therapy Felipe's older brothers walked in during the session. Felipe was so happy to see them, he was to distracted to continue working. we had propped up some pillows to get him to lift his legs and work out some hip flexor muscles. His brothers stood behind the pillows and refocused Felipe to climb up the sofa, and take some steps in the walker. Felipe was very excited to see them and was eager to please them by completing the tasks. It was great to have them around and hope in other days, we have have surprise cameo appearances by his bro's to help with physical therapy. My biggest regret, not being quick with the camera to capture the great brother love moment.
Ok Felipe's mom is super tired. Felipe has a cold. :( Daddy has a cold. Mami gotta take care of two babies, lol.
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