Thursday, 20 February 2014

Glory to God, Equipment is approved!

I received a call yesterday from the ongoing service coordinator with early intervention.  She had received a copy of the email that I had sent regarding having his equipment request rejected.  She informed me that they submitted the packet that day and was approved the same day!  yea!!  So we should be getting a specialized stroller and gait pacer walker in the next few weeks.

I'm very excited!!  Seeing Felipe stand is already a great moment.  he doesn't do it without assistance.  He can't bend his knees yet and plant them to push up and stand up on his own.  Mostly bc his feet are pointing downward and do not go to the 90 degree angle needed to stand.  However, the desire to stand and walk are there.  So hopefully with the gait pacer, he can develop even more freedom to wander the house.

his area for exploration has gotten smaller over the last couple of weeks.  We are slowly packing to move on march 1st and the house is filled with boxes.

Tomorrow, we have physical therapy again at Hospital for Special Surgery.  He was given a tape to see if that would help.  He didn't have any allergic reaction to it so I'm curious to see how it will help him re-adjust himself.  A progression that I've seen is that he lifts his knees a little closer to his chest.  This is a vast improvement from not being able to move his legs up at all.  This improvement allows him to crawl faster and to build up muscles necessary to take steps.  Once again, the feet is hindering his progress.  lets hope that we can resolve that soon!

Many thanks to friends and family who have been praying for progress with Felipe.  Glory to God for making all the pieces fall in to place at His divine time.

Next steps:  1) Ortho Second opinion appt 2/25 2) physical and immunizations 2/25 3) call the equipment supplier and inform him of new address change 4) complete packing  5) get yoga ball for my home to do exercises with Felipe 6) (its been on the list forever!) Join YMCA and enroll in swim class! 7) looking to attend a parents w special needs children mtg that I was just told about in Brooklyn Tabernacle.  Hopeful to find some guidance and support from people who are going through similar situations.


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