Another long day....but good results

Met with new neurologist.  She was very nice and professional and we will be following up with her in 6 months time.  She assured us that things seem to be progressing in the right direction.  The swelling is decreased and there is progression in his movement as soon as 4 months.  While it feels like an eternity to me, it really has only been a little over 4 months since his spinal surgery.  She strongly recommends intensive physical therapy in order to keep working him muscles and bones.  The final picture of how he would be like, for a life time, can not really be assessed until he is about 2 years old.  So, I'll take it as good news.  Praise the Lord for the recovery he has had so far, and please praying!!

Since we got the ok from both the neurologist and the neurosurgeon, we should be ready to botox his heel cords soon.  I would like to get a second opinion about his overall treatment first.  We are scheduled to meet with another Ortho on 2/25.  On 2/25 he will be also be getting some vaccinations.  

Early intervention, smh.  They rejected the request for the specialized stroller and the walker based on the fax not coming in properly. It gets me so mad.  16 days to tell me that the fax needed to be resent.  but what is even worse, they are saying to resubmit the whole packet again.  EI will be hearing from me, once I get over the soreness in my body.  I need more energy, I might even have to start drinking coffee! (say it aint so!)

HSS PT went well.  He is buckling at his knees which makes it hard for him to take an extra step.  So Kinetic (?) tape was suggested.  It apparently works similar to bengay.  The tape looks like medical tape.  you place it along the muscle you want to focus.  with each move of the muscle the tape heats up a little (like bengay) and the baby will start to realize that muscle being in use, or not in use.  First step, we trying to see if he is allergic to the tape.  a small patch was placed on his skin.  If he develops a rash, its a no go.  but fascinating addition, if he can tolerate it.  Oh, before I forget, both PT told me to get a massager or a vibrator for his muscles.  the Vibrating will help stimulate his muscles.  So I'm off to buy a portable massager.

I had to walk in the snow yesterday and today.  Well pushing a stroller in it fells like pushing a stroller in sand, exhausting.  I'm tired.  Advil, hopefully taking effect soon.  Its a reminder that I have to get into better shape and that i need to sign up for assess-a-ride.  Trekking in a blizzard can be avoided if I apply!  Now to find the time between preparing for a move and handling Felipe.  sigh.

on that note, gnite.  next steps: 1) Ltr to EI requesting equipment be ordered ASAP  2)apply to assess-a-ride  3) apply to SSI 4) enroll in swimming classes at YMCA 5) schedule my own medical appointments before returning to work 6) buy a handheld massager. 7) get yoga ball to my house to practice how felipe responds to sudden falls/movement--he needs to get better at protective reactions. 8) pack  9) get over soreness!