...MRI is stable. Its where it needs to be for Felipe having had surgery in December 2013. What a relief!
So what's next? 1) We will need to get the MRI report to the pediatrician and the orthopedist. Now that new spinal issues have been ruled out we will need to tackle the issue of his hips. 2) see if we can get thera-togs. They are these strip of cloths that line up in a particular way to give the body extra support in standing up straight, realigning knees and hips. The physical therapist is ordering them through EI, so the paperwork is overwhelming at time. 3) Follow up with neurosurgeon on 2/13. 4) new patient appointment with new neurologist at Cornell on 2/14. 5) Urology appointment in April.
We got Hiphuggers in the mail! finally, the order was placed a while ago. But they are basically spandex shorts that are sewn to the knees. It limits the hips from getting too wide. The physical therapist saw it and thought they were great and were helping him with his leg positioning while he crawled. but he can only wear it for 30 minutes at a time. We want the weaker muscles to get stronger and if we leave them on for too long his body will just get dependent on the support given by the shorts.
He has done 30 minutes in the stander, he was having a rough time the last 10 minutes. I think I need to plan ahead and try to get good TV shows or good food for him to just want to stand in one spot for so long. He then spent 30 minutes in the hip huggers, he seemed happy to be able to crawl around. I also got a mirror so that he can see how he is to crawl.
He is a little slower to take steps. mostly bc he can't feel his feet so taking a step is hard to get him to understand. now with the mirror, we tap the floor w his foot, then take a step, and hoping he will look to feet and wonder what it has to do next.
on that note, time to go and stretch some more. back to work!
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