Photo documentation and getting into a routine...

Routines are the way to go with kids and for efficiency for adults...or so I am told.  Unfortunately, having a child who just got out of the hospital, had fever and is taking antibiotics, the routine and usual sleep schedule is out the window.  The last few days, Felipe has gone to sleep around 1:30-2am.  Waking up at 10am and then maybe taking a nap at 3 or 7pm.  :(  The new exercises are also affecting him bc after an hour or so of strengthening exercises and stretching he gets very tired and takes a very long nap.

I've been told by EI to start to document Felipe's blister recovery.  I hope to get an appointment with an Orthopedist this Monday to start keeping track on how these braces can be best used.  Right now the PT is saying that he should only  use them to do standing exercises.  I was hoping to get braces so that he can sleep with them and help him overnight.  Given his limited sensation, meaning he won't complain if a blister is starting to form, we can't do things overnight.  I get that, but at the same time I want to use every waking hour to make sure things are being done to return his sensation and stimulation to his feet.

I've also have advanced his pediatrician appointment in the hopes to get her to really rally the specialist and try to get everyone on the same page.  I was under the mistaken belief that the neurosurgeon was supposed to rally everyone to follow up with  Felipe.  I've been informed its the pediatrician.  Things have to be centralized and so, I plan to sit down with her and try to see what else we can do for Felipe's health.

Monday: Physical therapy again at 4! I hope to complete all my assigned stretches and exercises by 4!

Blisters on Feet 1.5.2014

Blisters on Feet 1.5.2014

As requested by some, this is Felipe's spinal surgery scar.  its healed nicely!  his kidney scar is so small in comparison. I'll update soon with it, he has been getting quicker about rolling away from me ...  1/5/2014