Patience is a virtue

A virtue I am in short supply of.  So I am supposed to get a phone call regarding the MRI results to see how the baby's spine is doing.  I haven't.  I am trying to exercise patience and wait to call the neurologist for the final results on Tuesday at 3pm.

Spoke with urologist on Friday, since stent removal went well, next appointment with doctor won't be until April.

1/25: Saturday was his birthday party.  Felipe was very happy and well entertained. He was passed around, among friends and family, for over 4 hours.  He was in a good mood and even skipped his usual nap bc he wanted to remain in the party. (photos in separate post)

1/26: Felipe had physical therapy today.  The physical therapist noted that he has an scrape on his foot.  It was created when Felipe crawls, his toes are curled in ward, causing a bone to stick out more than usual.  And so there is an area of greater friction.  He wears socks in the house to crawl so at least he has that protection. I was asked to find "soft shoes" for him.  I'll try to see what I can find.  His feet are pointed downward that more shoes that I put on, just slip off. I've added a photo here for purposes of documentation.  I think its healing as long as we give the wound some time to dry up.

Wound from crawling 1.26.2014

I'm also attaching a photo of Felipe in his new stander.  He is strapped in, with his foot braces on, and he has to stand on his own weight for several minutes.  The first regime will be to stand for 30 minutes and then progress to standing for an hour.  Needless to say I have to make sure I keep him entertained.  For 15 minutes, we rolled a ball to each other.  And for the remaining 15 minutes we watched Shrek the Musical.  I'm grateful for Netflix' streaming, it was a Broadway show, and well, i think it looked so weird that Felipe couldn't turn away from the screen.  Tomorrow, another 30 minutes.

Felipe in Stander for first time

Felipe confused that table tray is clear

1/27: to do: 1) wait patiently for MRI results from Neurologist (or if no phone call by 3pm, telephone stalk them till I get a result). 2) Trying to get Felipe some out door time, he likes the fresh air.  its just hard when the windchill factor is below zero.  Going to join the local YMCA, they have swimming classes that start in March and family swim time every day.  Looking forward to taking him to the pool again. 3) Stretches every 30 minutes.  4) get a full length mirror as a part of rehabilitation-- supposed to help him see himself crawl and autocorrect when his hips get too wide.  5) Stander 30 minutes  6) use hot/warm towels on calfs and hips to loose muscles more and help with spasms.