Oh Felipe!
Felipe is now at the phase where he likes to push the limit of when he will fall asleep. He usually naps around 3-4pm but yesterday he refused to go to sleep. A friend was over and he couldn't pass up the opportunity to play with someone else aside from mami. So instead, he played till he passed out, against his will. Unfortunately, he was awoken a few minutes into his nap by the sound of the door bell. The physical therapist had arrived and it was time for therapy.
Felipe was not having it. He cried and cried and cried. Unfortunately, it was the most unproductive session we have ever had. The theratogs had arrived and they first need to be measured to fit him perfectly. The vest portion seems to be about 5 inches too big while the leg portions seem to fit well. I hesitate from cutting anything especially since its so costly. I'll leave it to the physical therapist to decide that. Nothing was properly measured bc Felipe was refusing to stand or situp. He was demonstrating his great imitation of a worm, full body weight to the floor and squirmed away from mami and she tried to redirect him.
Theratogs have to be worn for 30-45 minutes at a time for 2-3 times a week. The PT said that was the minimal amount but at optimum useage, they can be worn for 30 minutes every day. The time spent in them can't exceed 30 minutes. Feeling the material, I'm not sure that Felipe during the summer month can really tolerate it for 30 minutes. The theratog material is sort of like a wetsuit material or similar to those "loose weight quick" blue sweat producing bands that they sell for the tummy area. The idea behind it is that one side of the theratog has a material that pulls the skin or sends a sensory response to the skin. Because there is friction in putting on the material, when Felipe walks or crawls, the material will pull his skin in the direction it should be. It start to feel uncomfortable to be in the incorrect sitting or crawling position. Theratogs are similar to the idea of the kinetic tape that was tired with Felipe is HSS. Although no tape to painfully remove--that stuff had some crazy adhesive material.
Today we have the PT at the gym. I have the suspicion that all of Felipe's recent colds and pink eye are a result of the this gym not cleaning their equipment properly. there are a lot of kids there with student physical therapist and I don't see them separating out toys that need to be washed after having sessions. After Wednesday's session, I realize that I have complained about this location more than I have had anything positive to say, so I think its time to just move on to another agency and location. The PT has provided her notice, she told me yesterday that she might want to leave earlier than July to take care of family issues. While means, the search for a new Physical therapist has to start right now.
To do: sadly still on my list: SSI application. I just need a block of time to devote to it without Felipe trying to fill out the paperwork with me!
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